When a loved one is diagnosed with dysphagia, family members may feel overwhelmed. Many people are unfamiliar with this disorder and worry they won’t be able to help their loved ones navigate the accompanying challenges. They may need to step in as caregivers and wonder what this will entail.
Medical professionals will provide an overview of the disorder, but families may still have questions. They might look into buying a cookbook for dysphagia patients or invest in other resources. Before doing so, they may want to read this guide, which provides an overview of dysphagia. When doing so, they might wish to make a list of questions to ask the medical team or look for in the resources they find.
What to Expect
A dysphagia diagnosis often leads to many changes in daily life. Family members can expect to spend more time preparing meals to ensure they are safe for the loved one to eat. Caregivers might need to take time off from work for treatment sessions and medical appointments and set aside more time for meals. The person with dysphagia might need to sit upright or have other measures in place to ensure they can eat safely. They might wish to eat alone, which can lead to changes in dining habits. These individuals often experience reduced energy levels and tend to lose weight. Caregivers must watch for this and encourage them to eat or talk to the medical team to learn ways to make foods more appealing. Dysphagia patients might also suffer from anxiety or depression, so caregivers must watch for signs of these mental health concerns.
Supporting a Loved One with Dysphagia
Every person deals with a dysphagia diagnosis differently. However, they all need physical and emotional support from loved ones. Family members should listen to their concerns and let them vent. Remain patient with them, as they may struggle with the diagnosis. People should never be judgmental when talking to individuals with dysphagia. They are going through enough and need patience and understanding as they try to eat. If they no longer enjoy eating, weight loss and a lack of energy will be concerns to watch for.
Individuals with dysphagia need a place where they can eat meals free of distraction. They often prefer privacy when eating and may require a quiet environment. Family members should accommodate their requests. Loved ones should be there to encourage them to follow their treatment plan, and family members should educate themselves on the disorder and learn how they can help and support the person with this condition.
Caregiver Support
Caregivers of dysphagia patients also need support. Their lives may change overnight, and they are at risk of burnout and exhaustion. Caregivers must practice self-care as they help their loved one adjust to the diagnosis.
Every caregiver needs to set aside time each day for themselves. They may use this time to take a walk or connect with family and friends. Humor is essential for caregivers, as it adds joy to their lives. They need to find a support group where they can connect with others who understand what they are facing. Talking with a trained mental health professional may also be beneficial.
Most importantly, caregivers need to give themselves grace. They are embarking on a journey they never envisioned and will inevitably make mistakes along the way. Acknowledge the error and move forward. Nobody’s perfect.
Surviving and thriving with a dysphagia diagnosis is possible for the patient and caregivers. People do so every day. Don’t hesitate to reach out for help, as doing so ensures the patient gets the highest level of care and feels supported throughout their journey. When they do, outcomes tend to be better.
